I have had much help getting to the place I am today, living FULLY despite the pain of FM, IC, IBS, GERD, and FMD. I am including some of the resources that have positively impacted my progress.
I commit to only recommending resources
that I have personally tried and trust.
(I plan to add more detailed reviews in the future.)
- The Brain’s Way of Healing by Norman Doidge, M.D.
- The Body Keeps Score by Bessel VanderKolk, M.D.
- The Four Agreements: A Practical Guide to Personal Freedom by Don Miguel Ruiz
- Wherever You Go, There You Are by John Kabat-Zinn, MD
- The Miracle of Mindfulness by Thích Nhất Hạnh
- Life Beyond Fibromalgia: A Personal Guide for Moving Forward and Leaving Struggle Behind by Elaine Merryfield
- The Fibro Manual and The Fibro Food Formula by Dr. Ginevra Liptan
- Gaia-My Yoga Online
- Insight Timer
- Calm-Meditation, Music, Stories
- Daylio-Mood Monitor
- The Tapping Solution App
- Dr. Liptan (You Tube Videos)
- Chronic Pain: Is It All In Their Head? -Dr. Daniel Clauw, M.D.
- LDN Research Trust
- Fibromyalgia Association of Michigan
- National Association of Fibromyalgia
- Interstitial Cystitis Association
- Fibromuscular Dysplasia Society of America
- Palousemindfulness (A free 8-week mindfulness course)
- Low Dose Naltrexone (Newest addition-55 days in. Started at 0.25mg and am now up to 2.5mg and still titrating up to find my best dosage amount). Sleeping pretty well without any other help; clear headed most days all day; less pain overall, more energy. My first post: Tentatively Ecstatic: My Experience with LDN Part 1 I plan to write Part two soon.
- CBD/THC 1:1 Oil- This didn’t seem to help with pain, but sure did help me sleep soundly. I was taking .25mg sublingually before bed. I stopped because the LDN seems to be helping with it and my GP expressed issues with it (even though I have a medical marijuana card and it’s now legalized even for recreation in MI). My post: Out of the Rabbit Hole: CBD/THC Oil for Fibromyalgia
- Meditation: I have continued with meditation after finishing the Palouse Mindfulness 8 week free course online. This is making a big difference for me. My post:The Danger of Distraction: Turning Toward Pain to Eliminate Suffering
- Yoga and Breathwork: This is an ongoing, continuation practice of 20 years. However, I’m having to learn that my practice looks different now. I had always strived too much to get to that perfect form of a pose often injuring myself in the process. I’m doing much more Restorative, Yin, and slow yoga practices these days.
- Supplements: Magnesium Malate/B-12/E/D3
- OTC: Bayer Back and Body (for headaches and pain) & Low Dose Asprin for FMD
- Prescription: Vyvanse (I was diagnosed with ADD one year before my FMS diagnosis; I do think that the ADD symptoms, though, are more connected to the FMS issues.)
- Hot pad, ice pad, Epsom salt baths, and hot tub.
- Massage & Myofacial Release: Professional massage & myofascial release, myofacial release @home using foam roller and Yogu Massage Balls, and Rhenpho Massage Gun
- Gentle cardio: walks, hikes, bike rides, and swimming
- 10-week Interdisciplinary Pain Management Program through Mary Free Bed – My Post about this: Just Breath and Other Ways to Rewire the Pain-filled Brain
- Diet: I haven’t made a ton of changes. This is an area where I really hate being deprived. I have given up on dairy. I eat way less gluten (doing a lot of substitutions). I intake food with high acid much, mostly because I hurt immediately after. I rarely drink carbonation and don’t drink much caffeine. I tend to lean vegan due to the no-dairy. However, I do eat some poultry, eggs, and fish. However, I just can’t cut out tomatoes.